Let there be sushi, and 4 wonderful hours!

For the first time since April 24th, yesterday, we were able to take you off hospital grounds. I am so proud of you for being able to be on a high level so long that they let us whisk you away for FOUR GLORIOUS and WONDERFUL hours. I had a great time with you, as well as Big sis, Little sis, Spence and Dad. It means so much to all of us, but it just touches my heart so to see how it means something different to each of us. For me, I feel more complete when my family is all together, as odd as that might sound. When you aren't around, and Mandie isn't living at home due to her having her own house now, it just feels so incomplete at times. But yesterday, we weren't in the room just talking on the couches.... we weren't in your room visiting on your bed. Although I love to go to your garden and see what you are accomplishing with it, and I love going to the gym and watching you high tide and seeing you shoot hoops while Little sis plays hop scotch with Mandie, dad shoots hoops and Spence takes pictures.... yesterday we got to walk on the city streets. We got to go on elevators and escalators and go into stores. You got to help put Carlie in her car seat, and you got lots of hugs from her when we were driving. You got to spend time with Spence and Mandie by yourself. It was so exciting son!


We took you to Todai just like you wanted and this photo makes me smile. There is my Taylor on his third plate of food. You were slowing down on the sushi, but there you have your desserts. Of all the desserts you could have, there you are with green jello. You always have loved jello, and especially that of the green color. Here, you were being a nice brother and letting Carlie have some from your plate. That doesn't surprise me as you always are so good to her and try to take care of her so much.
I am sorry I had to tell you that Grandma Dodie passed away. I know that death affects you even more than it does most people. I would have liked to skip that part of the day all together, but we don't feel like we should lie to you or keep things from you. It is going to be ok.

I am excited that they have said that if you stay at a high level you can come home for a full 24 hours son! Not 4.... 24. I feel now, like I am being stingy. I am feeling like I am getting so spoiled. I keep going over in my mind who will be here. I am thinking of your favorites, what should I make him to eat. What should we do.... I couldn't sleep last night I was so excited.

Just keep on keepin on buddy and do it with a smile whenever you can. Just know you are so loved. I wish you knew all that was going on in our lives, wanting to help you. I am not amazed at how much your sisters love you really, but more, I am amazed at how much they will do to make that so clear. Car is so little but Mandie is going above and beyond.